Journal entry by Debbie Heiman — 12/29/2016
We made it through the festivities with my side of the family in Indiana and Michigan with good health. Lexi started feeling sick the morning we left MI (26th). She was finally feeling better this afternoon (28th). She was feverish and had overall aches. She did a lot of sleeping.
We are all praying that the rest of us stay healthy in order to head up north for the Heiman side of the family Christmas/New Years on Friday morning.
We had a great time in Indiana and Michigan and got to stay overnight at Mom and Don's, Jenny and Jonathan's and Pam and Eddie's houses. It was a lot of packing and unpacking, but it was fun.
Today was Scott's appointment at Froedtert. His labs looked good and he is set to start chemo when we return from up north. His chemo will be January 3rd - 6th. Neulasta shot will be January 7th.
Dr. Charlson wants Scott to have a CT scan after this upcoming round of chemo. It will be done on Monday, January 16th. We'll get results on January 18th. The next round of chemo is already scheduled for January 23rd - 26th.
Scott has been able to maintain his weight. We're really happy to see that he didn't lose any more since his last appointment.
He still has his good days and his not so good days. I pray for more good days ahead.
We hope you all had a very Merry Christmas! Happy New Year to everyone as well!
Journal entry by Debbie Heiman — 1/6/2017
Scott had chemo Tuesday-Friday this week. He was able to work every day after chemo and make it home for dinner every night. This was a blessing for the kids and I! I was able to be with him at chemo every day, along with my 8 1/2 month old daycare buddy Joshua.
As always during chemo, he has a very hard time getting much sleep at night. The Dexamethasone steroid that he gets every day along with the chemo makes him figgity and unable to sleep for more than a couple hours at a time, if he's lucky. Tonight should be the last night that he is affected by that, so hopefully he'll start sleeping better on Saturday night.
He has to go to Froedtert tomorrow at 11 for his Neulasta shot. Then, we have a break next week. This is the week that we ran into problems and ended up at the hospital during the last 2 rounds of chemo. Please pray for a fever free week next week and minimal negative symptoms! He is going to do EVERYTHING in his power to stay out of the hospital this time. Unfortunately, I'm pretty sure it's mostly out of his control. His body is just reacting to the treatments.
His CT scan will be on Monday, January 16th and results on January 18th. The results will help us figure out what our next step will be. If everything remains stable, which is our prayer, then he will have 1 or 2 more rounds of chemo, I believe. After that, possibly a bit of a break for his body.
If there has been any growth in his liver tumors or if new tumors have returned to his peritoneum, then I have no idea what we will do next.
This aggressive cancer is so hard on a person's body! He has done SO much chemo, had his stem cells harvested, had major surgery, had whole abdominal radiation, more scans than I can count, and the list goes on and on!
God is truly an awesome God, however! Scott has been battling with all of his might since day 1! It has been the hardest 21 months of his life! He has NEVER been alone in this fight, but has an ever present God who is with all of us every step of the way! He is doing better than I could have ever imagined after so much treatment! He's a fighter, and I know he's going to give it everything he's got.
I can't even begin to tell you how important our faith in God has been in this journey! If our kids have any questions or concerns, I can immediately bring God into our discussion.
Myles (7 years old) is our little prayer warrior! I better never forget to pray for Daddy with him every night (and for other cancer fighters that we know), or he'll be yelling for me to come back into his room. He sure does love his Daddy!!!
I don't even want to think about how our life would be right now without God at the center of it. Knowing that HE has a plan for our family is so comforting, even when times are SO hard! We have him watching over us, and no matter what our future looks like, he'll take care of us.
If all goes well next week, then I will update on the 18th after we get his CT scan results. I hope this is my last post until then.
For the next 2 weeks or so, we'll just be busy with our kids and their sports. Tonight, Tyler and Hannah have basketball games. Tomorrow, Myles starts basketball through the West Allis rec department, and Sunday is Tyler's baseball pitching clinic. I love it that the kids are involved in sports and staying active. It's fun to see them improve in each sport over the years! Enjoy your weekend everyone!
Much love from the Heiman family! ❤️
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