A Work In Progress

A Work In Progress

Saturday, August 12, 2017

August Updates - Part 2 - Scott's Good News!

All good news!

Journal entry by Debbie Heiman — 8/9/2017
 I don't have time to do a detailed update right now, but wanted those of you who are wondering to know that today went very well. All of the news that we received was positive, and we are so thankful! I will update tonight before bed hopefully. 

God has been so good to us!


Journal entry by Debbie Heiman — 8/10/2017
When we met with Dr. Mogal this morning, he told us that the CT scan Scott had in the hospital last week was compared with his last scan. Looking at the liver tumors, everything remained stable!

They saw no new growth in his peritoneum. They are hoping that what they saw in his peritoneum was just scar tissue. There is really no way of being 100% sure.

Dr. Mogal told us that we would wait 3 months and then have an MRI. I said, "3 more months without treatment or a scan?" He said yes. He said that we could talk with Dr. Charlson and if he wanted to do sooner, that was ok, but he wouldn't do it right away.

We then met with Dr. Charlson. I expressed my concern in waiting 3 more months without doing ANYTHING. Dr. Charlson said that we could do a scan now or in 6 weeks. Scott would love to wait 3 months, but we compromised on having an MRI in 6 weeks. The MRI will give us a clearer picture of what is hopefully scar tissue. If Scott begins to have pain or feel symptoms, we can move the scan to a closer date. The MRI will be on September 18th. We get results on September 20th.

We are so thrilled that his scan has remained stable for so long and that Scott gets to enjoy such a long break from treatment! His quality of life has been so good lately, minus the week of feeling terrible. We are enjoying life and loving the treatment free days. 

God has been so good to us! How can you not believe that HE is there with us, taking care of Scott and our family, and answering the prayers of more people than we could even imagine! It truly gives me chills! We pray that this good news continues for a LONG time! 

I am humbled by the grace that he has shown us. This week has been tough. Lexi's good friend Mackenzie lost her Nana on Tuesday, after a battle with cancer. She was only 58 years old. A wonderful man in our congregation just passed away as well. They will both be missed by many, but we are thankful for the blessing of their eternal home in heaven! 

August Updates Part 1 - Leaving Hospital

Journal entry by Debbie Heiman — 8/1/2017
This morning, they put Scott on a clear liquid diet. He tolerated that well, and by 6:30PM, they changed it to a full liquid diet. The full liquid diet adds pudding, ice cream, and strained cream soups (instead of just broth). So far, that is also going well. He has no pain. They removed him from his IV fluids since he is drinking plenty now. This is another step in the direction of going home.

I really think that we'll be able to go home tomorrow. We pray that all goes well with the addition of soft solids tomorrow. Please pray for a good day tomorrow and the clearance to go home. If we do get to go tomorrow, I'm sure it will be in the evening. That would be just fine with us though.

Yesterday and today, we were able to head down to the 2nd floor and sit in the courtyard. It's great to get some fresh air! Scott is in much better spirits today and I even got some grins out of him when I was acting silly. I love making him smile and laugh. It is so hard to see him down in the dumps! 

I feel like Scott and I can do anything when we're by each other's side (with God at the center of our marriage, of course)! We've remained strong through the hardest days. I was thinking about how good I feel when he's around. It doesn't matter what we're doing, I just feel whole when we're together. He makes me happy when skies are grey. He'll never know how much I love him! Please never take my sunshine away. I know, those are kind of the lyrics from "You are my sunshine". I was goofing around and singing that to him. He tried not to smile, but he likes the attention. I know he does! 😉

Well, it's after 11, and I'm tired. I'll post an update tomorrow, especially if we get out of here.

Journal entry by Debbie Heiman — 8/2/2017
I lay here writing my CB in our bed, with Scott sleeping peacefully next to me. I'm so blessed!!! We haven't been in our own bed since Thursday, July 20th. It's great to be home!

This morning, the doctors and nurses said that we would be able to go home after he ate some food. He had a breakfast sandwich, pears, and a mini cheese danish. He ate all of it and felt good afterwards. We were discharged and home around 12:30.

Scott's parents took care of the kids for us while we were in the hospital. His Mom made us tacos for dinner and then we went to Myles' last baseball game for the summer. We're so thankful for what they did for us.

Scott is on a restricted diet. He needs to stay away from raw fruits and vegetables, tough meats/proteins and whole grains. These things are hard to digest and we can't risk another bowel obstruction.

We will return to Froedtert next Wednesday for a follow up visit with the surgical oncologist, Dr. Mogal. We will meet with Dr. Charlson, Scott's oncologist, after that. We found out that the reason Dr. Charlson never came to see us was because he's on vacation. We knew it was very odd that we hadn't heard from him.

Dr. Mogal said that Scott could return to work if he wanted to. I asked to make sure it wouldn't be too much for him. You know what Scott's doing tomorrow, don't you? He hates that he missed 3 days, and wants to get back so he doesn't get any further behind. He is a dedicated manager for sure! What a wonderful example to his employees! I'm so proud of him and what he is capable of accomplishing. It's truly amazing after what he just went through. 

I'll update with more information after our appointments next Wednesday. For now, we pray that what is showing up on his scan is ONLY scar tissue. We need to remain positive and not think negative. 

God Bless each and every one of you for your love, concern, and prayers! God heard our cry and answered by sending us home and making Scott feel so much better.