A Work In Progress

A Work In Progress

Sunday, April 9, 2017

Scott Was At The Masters & Has a Scan Tomorrow

 

Scott and Matt had a great time at the Masters!  Seeing these smiles makes me so happy!  Scott and Matt have been Best Friends since Childhood.  Here is Debbie's post from before they left for the Masters.  They got back last evening.  Please keep the Heiman Family in your prayers as Scott gets a scan tomorrow and they then wait for the results.  It was 2 years ago today that Scott went to the ER and was told he most likely had cancer.  Six days later they would learn it was DSRCT.  Thanks for your continued prayers! :-)

 

Ready for the Masters!



Journal entry by Debbie Heiman
The day has come, when Scott leaves for the Masters in Augusta, Georgia! The kids and I take Scott and his life long friend Matt to the airport right after we pick the kids up from school. The kids wanted to take him to the airport.

Being the dedicated boss and hard worker that he's always been, he has really pushed himself to get his work done before he leaves. He worked long days on Monday and Tuesday, and he will work as late as he can today before he leaves. He's setting a good example for his employees!

God is so good! Scott has remained healthy and fever free in the year 2017 so far. This is huge, considering the fact that we had some pretty sick kids this year! Lexi has had a rough year! She struggled to fight off pneumonia throughout the whole month of January, going through 2 separate rounds of antibiotics. In March, Lexi and Hannah both had horrible colds which turned into sinus infections. Then, Lexi got the stomach flu last week. Myles, Tyler, Scott and I remained healthy. I'm so thankful that Scott didn't catch anything with his low immune system through the rounds of chemo that he's had in 2017 so far. 

Scott returns home on Saturday night. I pray that he has a blast on this trip! I really encouraged him to go. I'm hoping he can get away and try his best to forget about cancer for a while. He definitely deserves it. He has fought his heart out for 2 years! I hope he feels healthy and has enough energy to do the things he wants to do!

Monday, April 10th is Scott's CT scan. We receive results from the scan on Thursday, April 13th. We pray that his scan remains stable. If anything has changed, we will be requesting a PET scan next. The CT can show us if any tumors have returned to his peritoneum (abdominal cavity), or if the tumors in his liver have changed in shape or size. What it can't show is if the tumors are showing a lot of uptake or cancer activity. Stable is best!!!

That's the news for now. Please join me in praying for a safe flight there and home for Scott and Matt! Please pray that Scott has a phenomenal trip, like he deserves!

Please continue to pray for my Mom and step-Dad Don. Don is back to work at his full time job. He can't drive for at least 6 months after the seizure, so he is on a leave of absence at his part time job, where driving fork lift was his only job. 

My Mom continues to deal with a lot of pain! Not only does she have terrible pain from the tumors down her spine, but she deals with arthritic pain from her Lupus. With all of the rain we've had lately, the arthritic pain is escalated. Please keep both of them in your prayers as well!

Below is the link again for our Team Heimanstrong. Our whole family will be at this Race to cure Sarcoma on July 16th. If you are willing to join our team and support Scott, click on the link below to register. It is being held in Oconomowoc, WI. Tyler and I will be running. Scott will be walking with Myles, Hannah and Lexi. We will wear our yellow Heimanstrong shirts on race day. If you would like one, they are only $5. (Let Debbie or Jen know if you want to order or have questions. We hope to see you there! I want to build the biggest team possible to encourage Scott and remind him that he is loved by SO many!



Wednesday, March 29, 2017

Debbie's 3/23/2017 Post with Updates on Scott

Scott's month long break


                         
Journal entry by Debbie Heiman
It's been 3 weeks since I posted, so I wanted to get everyone up to date on Scott's status. He finished chemo on March 9th, and had his Neulasta shot on March 10. He hasn't had to set foot in a hospital or go to any appointments for almost 2 weeks, and won't have to until his CT scan on April 10th.

The week after chemo was rough, with a lot of stomach issues. Nothing he ate seemed to agree with him, and that is very frustrating. He would get hungry, but didn't want to eat because of what it did to his stomach. Thankfully, he's been feeling much better this week. I'm just so happy that he has remained fever free once again and avoided a hospital visit.

Through chemo week and everything else, Scott has continued to work full time. Most weeks, he's even putting in a bunch of overtime! It's incredible that he is able to have enough energy to work that much. He is an inspiration to me!

On April 1st, we will be attending a Sarcoma event at Milwaukee County Zoo. I will be on a question/answer panel for caregivers and talk for 5 minutes about being a caregiver to my spouse. I am extremely honored to be chosen for this position. When I was called by one of Scott's nurses and asked to speak, I asked if it would be ok to talk about my faith. I told her that if they want me to speak about how I've handled everything in the past 2 years, I would have to talk about my faith. Otherwise the answer would have been NO. Thankfully, she said it would be fine. I can't begin to tell you how God has carried us through some really rough days! Without him in our lives, I can guarantee we would not be doing as well as we are. 

The next big date is April 5th, when Scott and his friend Matt fly to Georgia for the Masters (golf-in case you don't know). They will be staying with Matt's in-laws. It was so nice of them to let Matt and Scott stay there! They will have a great time, and I'm so happy for him! He deserves a break from everything! 

On April 10th, 2 days after his return, he will have his CT scan. We meet with Dr. Charlson on April 13th to get results. Those days of waiting will be hard, but we will be doing a lot of praying to get us through.

Looking ahead- I know that this is almost 4 months away, but I just found out about this Race for Sarcoma. It is being held on July 16th in Oconomowoc, WI. It is a 5K, which is 3.11 miles. You can choose to walk or run. I want to get a huge team together to show Scott how many people are on his side, praying for him during his fight against DSRCT. The link below will take you to a page to sign up for this race. It's already marked Team Heimanstrong when you fill out your information. We will be wearing our yellow Heimanstrong shirts, so that we will stick out. I love that we can also share our faith while wearing them. The front has a cross that says Stronger than Sarcoma and the back has Scott's chosen passage - Psalm 62:5-6 Yes, my soul, find rest in God; my hope comes from him. Truly he is my rock and my salvation; he is my fortress, I will not be shaken. 

Scott knew that was his fighting passage when he opened the Bible right to it when he was in a very dark place. Not only had he been told that he had DSRCT, but this was 5 days later when he was in a hospital bed waiting for his heart to slow down from 200 beats per minute when his atrial fibrillation had gone out of wack. He finally had to have cardio version. We're so thankful that the procedure worked! 

If you sign up to race and don't have a yellow shirt, but would like one, I will be placing an order. I believe I can purchase them for $5 a shirt if I get an order of 10-15 or more. You can text me with shirt sizes.  (ask Jen or Debbie for Debbie's phone # and/or email address). Also feel free to contact me if you have any questions.

When you click on the link below, you can click on the menu button on the sign up page for more details about the race and the money that is being raised for Sarcoma research. Our family is also raising money for Sarcoma research. On the race page, you also have an option to donate. If you choose to do so, please make sure it is under Team Heimanstrong. We appreciate any/all support that you are able to give. Sarcoma research is very close to our hearts!

Here is the link to the race page:


What we will do for now is enjoy our time until April 13th. Once we get results from his scan, we will decide what the next step in his treatment will be. Our prayer is that he has remained stable, meaning there are no tumors anywhere except for in his liver. Hopefully the tumors in his liver have decreased in size as well! Whatever we are told on April 13th is all part of God's grand plan for our lives. We trust him fully! 

Much love from our family to yours! 💜