A Work In Progress

A Work In Progress

Monday, February 27, 2017

Scott & Debbie's Weekend Away - Debbie's Caring Bridge Post

This made me so happy, to know that they had such a wonderful time together!  They so deserved it!  2 years ago when we did this for them...Scott was feeling really sick.  He was diagnosed with DSRCT a few weeks later.  Last year he was going thru treatments and wasn't feeling well either.  He continues to go thru treatments after his surgery in NYC last June.  So for them to have a weekend away with Scott feeling well enough to enjoy himself on Saturday!  Wow!  Thank you Lord!  :-)  They surprised Myles (and the rest of us) at his Basketball game on Saturday Morning! :-)  Here is a pic I took, followed by Debbie's Caring Bridge Post.  Even with all they have on their plates, they are still choosing to be Thankful! <3 h2="">

Journal entry by Debbie Heiman — 18 hours ago

Scott and I enjoyed a little less than 48 hours on our own. Wow, the time sure flies by fast!

We left our house around 3:45PM on Friday, after picking the kids up from school. We went to Family Video to rent some movies and then headed to an early dinner. Yes, we had dinner at 4:30 with all of the retired people. We enjoyed a fish fry at Kegel's Inn, West Allis. 

After dinner, we headed to our hotel by the airport. We checked in and then made a trip to Target for snacks and drinks to have during our movies. 
We watched 2 movies, which were really funny! It was so great to relax and laugh together! 

We don't get much time to talk, because our lives are crazy and there are always kids around. Scott usually goes to bed before I do, because he is just worn out. We talked until about 2AM. It's was so nice to actually talk to my best friend without any interruptions from kids or nurses coming to check on him during chemo. It truly meant the world to me to have this precious time with him! Man do I love that guy! 

On Saturday morning, we went to Perkins for breakfast. I told him how much I was enjoying our time together. He made a comment about it not taking much to make me happy. It's very true. Time with the love of my life and my family is all I need to make me happy in life. I'm a simple person. You would think that after 19 years together that he would know that by now. 😊

After breakfast, we went to Myles' last basketball game of the season to surprise him. He was really surprised, and so were Jenny, Jonathan, and our other 3 kids. I'm so glad that we went!

On Saturday night, we went to Upper 90's Sports Pub for dinner. We ate alligator bites for our appetizer. They were pretty good. 

We then walked to the Milwaukee theater for a country concert. William Michael Morgan was the opening act, followed by Lee Brice and Justin Moore. It was a great concert!

We went back to the hotel and watched a 3rd movie. That one was good too. We were able to sleep in until 10AM, which was heavenly!

We checked out of the hotel and went to Noodles and Company for lunch. We then sat at Starbucks and enjoyed coffee and conversation before returning home to our crazy life!

Thank you Jenny and Jonathan for taking care of the kids and treating them to special things that they don't get to do very often. They are very grateful, and so are we!

As much as we enjoyed time away, it's great to be home again! If we had times like this often, we wouldn't be as thankful for these precious moments. I will forever cherish this weekend! It was everything we needed and more. 

Hopefully we are recharged enough to face the upcoming chemo and PET scans in March. Life with 4 kids and the challenges of that alone can tire parents out. Adding in the chemo, scans, appointments and side effects just complicates life. 

Please Lord, be with our family as we continue to face these challenges with you by our side! We all know that you know what the future holds and we need not be afraid! Thank you for carrying us through the hard times!  

A close friend of mine lost her Mother on Saturday morning, and other friends of mine lost their mother/daughter/sister on Saturday as well. Life is short and we need to cherish every day that we are given. I pray for God's peace to be with my friends in these challenging times as well!

Saturday, February 11, 2017

Caring Bridge Updates on My BIL, Scott From Jan 29th, Feb 3rd, and Feb 8th

Journal entry by Debbie Heiman — 1/29/2017
I realized today that it's been 11 days since I updated about Scott. He made it through chemo last week, but it's starting to hit him. 

Life never slows down for our family, but I'm thankful. I choose to focus my energy on others and to do all that I can while I have the chance. God has given me the ability to keep going for our family when Scott gets too tired. It still amazes me that he pushes himself even when he can barely stand on his own two feet. He is a warrior! 

He made sure that he was at all of our kids' basketball games this weekend. He helped me by getting Tyler where he needed to be so that I could be at our school's open house. These things aren't easy for him when the chemo is hitting him so hard, but he never complains! No one would have any idea how awful he is feeling by looking at him. He doesn't even tell me, but I know him too well for him to hide it. 

Please join me in praying for him this week. I would truly appreciate prayers for a fever free/hospital free week!

Like I said before, I'm thankful for our busy life! I feel so blessed to be busy, because an idle mind has too much time to worry. This busy life has me pretty tired out though! Time for me to sleep. God Bless your week ahead! 

Journal entry by Debbie Heiman — 2/3/2017
I am so thankful that Scott had a fever free week and was able to avoid any extra visits to Froedtert! The week after chemo is always the worst!

He wasn't able to rest much this week, due to being so busy, but he has handled it pretty well! The biggest problem this week is being tired. He has been going to bed around 8, so that's helpful. He needs rest to keep going strong like he is. 

Tonight we have tournaments in Mukwonago. They will be there all day tomorrow too. It's for B team basketball, so we have Tyler on the boy's team and Hannah on the girl's team. That will keep us busy. 

I just wanted to send out a quick update to let everyone know that Scott is doing pretty well! Our prayers were answered once again! Thanks be to God! 

I know we're not completely out of the woods for the past round of chemo, but his counts and energy level should start improving soon. He has 1 more week off before chemo starts on February 13th again.

Enjoy your weekend everyone!
Much love from the Heiman family 💜

Journal entry by Debbie Heiman — 2/8/2017
Scott had labs drawn today before his appointment with Dr. Charlson. His counts all look good to go ahead with chemo next week. His liver counts are all a little elevated. This seems to be the trend with Scott. Dr. Charlson doesn't seem to be concerned about it.

Next week will be round 5 of chemo since his surgery in June 2016. Scott will have one more round of chemo in early March. He will have a PET scan at the end of March. That's as far ahead as we're looking right now. We're not sure what will happen after that. The PET scan results will help us decide.

Scott has lost 2-3 lbs at every appointment since chemo started back up. It's not do to a lack of food intake. He is eating pretty well most of the time. Of course there are days when he isn't feeling very well. Again, the Dr. doesn't seem to be concerned, so neither will we. He's trying his best to put on some weight. I told him that most people have the opposite problem. He would happily take their weight for them.

Scott and I are really looking forward to a weekend alone! My sister Jenny and her husband Jonathan are staying with our kids for the weekend at the end of this month. We're getting our plans all figured out. This weekend is very much needed for both of us! I'm so thankful that they are blessing us with this time away! 

Thank you all for the continued prayers as Scott keeps fighting this monster. It's been a long 22 months for our family! God has helped us get this far, and we know he'll continue to help us keep fighting. 

There is always so much on my mind. We are working on all of the things that need to be filled out for Lexi to attend Wisconsin Lutheran High School next year. I can't believe we'll have a high schooler already! Yikes!

I better try to pray myself to sleep before midnight. Morning rolls around way too fast! What better way to fall asleep than talking to God? He's a Good, Good Father! Anyone know that song? Ok, God Bless you all! Good night. 💜